Wednesday, October 20, 2004

Phase 3

We began the third phase of treatment today (that's right we're back on wednesdays as our hospital day). This one is called interim maintenance and lasts for 8 weeks. He is on steroids again but only for 5 days at the beginning and 5 more days at week 4 so it shouldn't be too bad. The other change is a drug called methotrexate which he takes weekly and will start tonight. He has to take 8 pills tonight so that may be a challenge. He also had a vincristine injection today which is the drug that affects his coordination. The good news is that his next hospital treatment isn't until week 4 for a spinal so we have a nice break. He is feeling great and his sassy, silly, stubborn personality is back. We had a great time at a pumpkin festival this weekend and he was able to go to preschool on monday. One interesting note...although treatment lasts for 3.5 years, they run on a 28-day/month cycle. That means that his very last treatment day will be exactly 3 years from today. You are all invited to join us at Disneyworld in 3 years and one week! With love, Lara and Jim

8 Comments:

Anonymous Anonymous said...

So...are you going to hit the epcot center first, or maybe the water parks...or maybe just take the kids on the wildest roller coaster ride that they are tall enough for...
We are starting our countdown for 3 years. That will be quite a party at Disneyworld. We'll join you!!!
So glad to hear Jordan is feeling so much better. We hope you guys are also doing well!
Love, The Gurfields

October 20, 2004 at 1:47 PM  
Anonymous Anonymous said...

So...are you going to hit the epcot center first, or maybe the water parks...or maybe just take the kids on the wildest roller coaster ride that they are tall enough for...
We are starting our countdown for 3 years. That will be quite a party at Disneyworld. We'll join you!!!
So glad to hear Jordan is feeling so much better. We hope you guys are also doing well!
Love, The Gurfields

October 20, 2004 at 1:47 PM  
Anonymous Anonymous said...

So...are you going to hit the epcot center first, or maybe the water parks...or maybe just take the kids on the wildest roller coaster ride that they are tall enough for...
We are starting our countdown for 3 years. That will be quite a party at Disneyworld. We'll join you!!!
So glad to hear Jordan is feeling so much better. We hope you guys are also doing well!
Love, The Gurfields

October 20, 2004 at 1:47 PM  
Anonymous Anonymous said...

So...are you going to hit the epcot center first, or maybe the water parks...or maybe just take the kids on the wildest roller coaster ride that they are tall enough for...
We are starting our countdown for 3 years. That will be quite a party at Disneyworld. We'll join you!!!
So glad to hear Jordan is feeling so much better. We hope you guys are also doing well!
Love, The Gurfields

October 20, 2004 at 1:47 PM  
Anonymous Anonymous said...

Hey Jim & Lara,

Did you get the note from the Gurfields?
Count us in! We can't wait to celebrate with you.
Love, Trisha & Scott (really just Trisha)

October 20, 2004 at 9:27 PM  
Anonymous Anonymous said...

Lara & Jim

Our calendars are clear and we are making plans to celebrate with you in Disneyworld October 2007! So glad to hear Jordan is feeling more himself these days. Good luck with the pills - I cant imagine getting my kids to swallow one pill let alone 8! We are always thinking of you and are so thankful for your updates.

Jean, David, Garrett & Aidan

October 21, 2004 at 12:08 PM  
Anonymous Anonymous said...

WOO-HOO!!! Disneyworld '07. Can't wait. So glad things are looking up. You guys are amazing. Love Aunt Wendy

October 22, 2004 at 7:18 AM  
Anonymous Anonymous said...

HAPPY HALLOWEEN TO JORDAN AND NOAH!
Hope everything is going well and Jordan is feeling good. We think of you every day.
Love, Scott & Trisha

October 31, 2004 at 8:31 PM  

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