Wednesday, October 20, 2004

Phase 3

We began the third phase of treatment today (that's right we're back on wednesdays as our hospital day). This one is called interim maintenance and lasts for 8 weeks. He is on steroids again but only for 5 days at the beginning and 5 more days at week 4 so it shouldn't be too bad. The other change is a drug called methotrexate which he takes weekly and will start tonight. He has to take 8 pills tonight so that may be a challenge. He also had a vincristine injection today which is the drug that affects his coordination. The good news is that his next hospital treatment isn't until week 4 for a spinal so we have a nice break. He is feeling great and his sassy, silly, stubborn personality is back. We had a great time at a pumpkin festival this weekend and he was able to go to preschool on monday. One interesting note...although treatment lasts for 3.5 years, they run on a 28-day/month cycle. That means that his very last treatment day will be exactly 3 years from today. You are all invited to join us at Disneyworld in 3 years and one week! With love, Lara and Jim

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