To the ER

Well we had a great day yesterday and today we were back at the hospital. Jordan has been having chills and his temp was one degree higher than his normal. While it wasn't a fever, the on-call oncologist felt he should come in and get checked. It was all downhill from there. This was the first time Jordan has had blood drawn through his port and he completely freaked out. The ER nurse was unable to get blood (we later found out it was her 4th time ever at trying a port). The decision was made to give him valium and have the IV specialist try. Most kids get mellow with valium but not Jordan. He became combative and hysterical. Fortunately the IV specialist had no problems. The blood counts looked fine and the blood culture won't be back for 24-48hrs so we were sent home. After todays experience we are very concerned about how Jordan will cope with the next several visits. He came home today saying "I don't like that place, it is scary". He also doesn't want anyone touching his port. Fortunately, his temp is normal, he is doing fine, and for now there is no sign of infection. With love, Lara and Jim