Wednesday, August 25, 2004

Chemo begins today

Today we begin the long road to recovery. The first phase of treatment is called induction. It will last for 28 days and is designed to put Jordan into remission. He will be started on oral steroids twice daily which will have the side effects of a ravenous appetite and moodiness. He will also recieve a dose of chemo into his spinal cord today while sedated. He will receive weekly IV chemo and will have bone marrow biopsies on day 7, 14, and 28. His blood counts are good right now following multiple transfusions and if they remain high enough he may be able to come home for a few days this weekend. Now let me try to address the many questions people have been asking:
Should we donate blood? For now the answer is no. The quantities required for children is very small and the doctors are very confident in the safety of the blood they use. Hopefully Jordan will never need a bone marrow transplant but if does the bone marrow needs to be blood cells that his body has never seen before. Once this is over, we will definately become a huge advocates of blood donation and we are so thankful to the anonymous donors that have given to Jordan.
Can we visit? Yes! since Jordan has no immune system right now we ask that no children and no adults with any cold symptoms vist. Otherwise we LOVE company. Our days are really very boring and we love the encouraging words and hugs of our friends and family. We are in room 3270 and you don't even need to call first.
How is Jordan doing? He is doing great. He loves riding the halls of the ward on a tricycle called the "Green Machine" with mom or dad racing behind with his IV stand. We had to get longer IV tubing because he has turned his room into his own personal jungle gym! Noah came to visit yesterday and they were kicking eachother and laughing like normal. He also loves the guy with the snack cart.
That's all I can think of for now. We love you all and we are so appreciative of all the prayers! Lara and Jim

6 Comments:

Anonymous Anonymous said...

Thank you for the update. We are thinking of you constantly and praying for Jordan's quick and complete recovery. All our love, the Parnell's--Rob, Sabrina, Alex, Grace and Nathan.

August 25, 2004 at 10:17 AM  
Anonymous Anonymous said...

The Emmanuel Intercessory Prayer Group is holding little Jordan and all of you in our thoughts and prayers. Thank you for the updates. Take care. Bobbie and Larry Morris

August 25, 2004 at 10:28 AM  
Anonymous Anonymous said...

From the wednesday posting, it sounds like Jordan has been enjoying his new room and galavanting around the hospital like a rambunctious 3 year old. A bit of an adventure. He is lucky to have the care of the expert doctors and nurses and hospital staff, and all of the family and friends looking out for him and his road to good health. this is a difficult journey. I send my prayers to Jordan and all those around him. The chemo is going to be very toxic.. to date he has been running around, laughing and enjoying exactly where he is. This laughter and the family around him are exactly what will give his body the ability to battle the leukemia. He is 3 and thankfully isn't thinking about how to pay the rent, due to missed days at work, or if he'll get to go camping next weekend. he's not worrying about that because he is in the present moment. when he is feeling sick and drained, may there me an unlimited supply of people to comfort him and help him to do the things little boys need help with. At other times,when the struggles creep in and everyone is tired, may the older folks in Jordan's life see his strength, hear his laughter and through him find their own strength and laughter. Peace, hope and love to Jordan, Lara, Jim, Noah, Cathy, Paul, and all of Jordan's aunts, uncles, cousins, grandparents and friends. the website is beautiful. Thank you for sharing all of the detials. My prayers are with you.

August 25, 2004 at 1:39 PM  
Anonymous Anonymous said...

Gosh you guys... What an adventure you're on! Our Garrett is Jordan's same age, so the empathy factor here in the Post household is high- The UC Davis grapevine reached us! Just know our prayers are with you - If there's anything we can do, since we're "semi-local", PLEASE don't hesitate to call! Sincerely, Dana (Kamla) , Nathan, Garrett and Aidan Post 360-990-3920

August 25, 2004 at 9:13 PM  
Anonymous Anonymous said...

Just wanted your family to know that the Thursday morning prayer group of First Presbyterian Church in Palatka has prayed for and will continue to pray for Jordan and all of you.
Bob Bronkema (husband of Stacy Johnson Bronkema)

August 26, 2004 at 4:53 AM  
Anonymous Anonymous said...

Just wanted you to know, Jordan and all of you are on the prayer list at my Church-Life Center (Tacoma), we have a "band of 2,000" that pray daily for those on the prayer list. My weekly Bible study group is praying for you and my family and I will continue to hold you up in prayer. Thanks for the web site it is wonderful.
Dorothy May (Dr. Schneider's nurse)

August 30, 2004 at 5:35 PM  

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