A long week

We went to the hospital on wednesday to start the next round of chemo. Jordan had a really hard time fasting for the spinal this time. It was one of the hardest mornings I have had with him at the clinic since we started this. He was just hysterical and I ended up pushing him up and down the hallway in his stroller for an hour. We got through the spinal and had lunch at the hospital and then went to the inpatient floor to be admitted for his overnight chemo infusion. They start by giving IV fluids for 2 hours. About 1 1/2 hours into the fluids he began complaining that his port hurt. The nurse checked it twice and said it looked fine. As she was preparing to start the chemo, I checked his port and was horrified to see his chest protruding with a swelling the size of a baseball. The needle had slipped out of his port-o-cath but was still under the skin creating an infusion of fluids under the skin. We were sent home and the fluid absorbed overnight. We were re-admitted thursday morning and started all over again. Everything went fine and we are now back home. Unfortunately, Jordan has never gotten used to getting his "pokey" and now he is even more scared of it. The biggest challenge of this hospital visit was that we were in a group room for the first time. There was another family there with only a curtain separating us. The other boy could not sleep and was up all night. His mother let him watch TV all night and with the Harry Potter movie blaring in my ear at 3am I didn't get any sleep either! Good night, Lara