Tuesday, December 14, 2004

The next phase

Well today we begin phase 4 which is called delayed intensification. This is the one that we have been dreading. Many of the drugs are new ones that he hasn't been on yet so it is difficult to predict the effect. We can predict that his hair will fall out again, that his cell counts will get very low again, and that he will feel terrible. He was off chemo completely for the past week to give his body some down time and right now he is feeling better than he has since June. It is so great to have a spunky 3 year old in the house again. That will probably start to change tomorrow. He had injections of vincristine and doxorubicin today and started on the steroids again. The steroids are nearly twice the dose that he was on before and we are told that most kids get extremely lethargic. The good news is that the steroids are for 7 days and his cell counts won't drop until after day 14 so he may feel pretty good and Christmas! We will make postings more frequently during the next 8 to 10 weeks as we know that many of you are praying and following Jordan's progress. We so appreciate all the prayers and support that we continue to receive. Love, Lara and Jim

3 Comments:

Anonymous Anonymous said...

It sounds as each one of you have tremendous courage and great spirit. I do pray that you may sustain this in all the coming days and that you are assured of love being with you at all times.
Marilyn Sands West

December 19, 2004 at 5:24 AM  
Anonymous Anonymous said...

We are thinking of you and just crossing our fingers that this phase goes by quickly and easily. Please give our love to your whole family.
Love, the Gurfields

December 19, 2004 at 2:39 PM  
Anonymous Anonymous said...

Laura,
I ran into Jenna at REI and wanted to know how Jordan is doing? She forwarded his website address to me. We think of you all very often and ask about him when ever we see your parents. Please know he is in our thoughts and prayers and you are too! We hope the holidays are especially wonderful for your boys and that you may relax a moment and just enjoy their wonderful spirits. Love this website so we can keep up to date. Thanks and Merry Christmas! Carol Kelleher and family.

December 22, 2004 at 5:35 PM  

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